WHAT WE DO
BRING AWARENESS TO PEDIATRIC HEALTH CONDITIONS BY SHARING OTHER KID'S STORIES
COMMUNITY EVENTS THAT PROMOTE SOCIAL WELLBEING ( ON HOLD DUE TO COVID-19)
CONNECT PATIENTS TO OTHERS WHO SHARE THE SAME DISEASES
PROVIDE MENTORSHIP TO KIDS STRUGGLING WITH THEIR DIAGNOSIS
FUNDRAISING TO PROVIDE KIDS IN NEED WITH NECESSARY RESOURCES TO ACHIEVE THEIR GOALS
WHAT WE STAND FOR
WE BELIEVE OUR DIAGNOSIS DOES NOT DEFINE US RATHER IT SHAPES US INTO WHO WE ARE MEANT TO BE. NO MATTER YOUR BACKGROUND, ETHNICITY OR DIAGNOSIS-WE WILL STAND BY YOU AND FIGHT WITH YOU
FEATURED STORY: ABBY
"My name is Abby, I’m 21 years old and a junior in college. I was born with a rare genetic liver condition called Wilson’s Disease. It’s where your liver can’t properly eliminate or process copper and so instead, it accumulates in your liver and then other organs as well. I pretty much had asymptomatic symptoms of this disease throughout life- besides anxiety and other mental struggles that I didn’t know came along with the disease. Within a week before my transplant, (at 20 years old) I began having physical symptoms like jaundice, swelling of my legs and abdomen, extreme fatigue, and throwing up stomach bile, etc. A few days before my transplant I was diagnosed with Wilson’s and stage 4 acute liver failure."
WHY WE STARTED NLTOK
"I WANTED TO CHANGE THE WAY WE VIEW OURSELVES, VIEW OTHERS, AND CREATE A COMMUNITY FOR THOSE WHO FELT SOCIALLY ISOLATED BECAUSE OF THEIR DIAGNOSIS. "
JOSEPH VANDERLINDE / PRESIDENT / HEART TRANSPLANT SURVIVOR
" THE PATIENTS I MET THROUGH MY OWN MEDICAL EXPERIENCE INSPIRED ME TO STAND UP AND MAKE A CHANGE. WE WANT TO ADVOCATE, SUPPORT AND EMPOWER THIS GENERATION OF SUPERHERO KIDS "
ERIN WILLARD / VICE PRESIDENT / CANCER SURVIVOR